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Wondering

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Rights of Parents When a Baby Dies

"My infant son is dying. We want to bring him home. What can we do to honor him?"

Rights of Parents When a Baby Dies

To be given the opportunity to see, hold and touch their baby at any
time before and/or after death, within reason.

To have photographs of their baby taken and made available to the
parents or held in security until the parents wish to see them.

To be given as many mementos as possible; for example, crib card,
baby beads, ultrasound and/or other photos, lock of hair, feet and hand prints and record of weight and length.

To name their child and bond with him or her.

To observe cultural and religious practices.

To be cared for by an empathetic staff who will respect their feelings,
thoughts, beliefs and individual requests.

To be with each other throughout hospitalization as much as possible.

To be given time alone with their baby, allowing for individual needs.

To request an autopsy. In the case of a miscarriage, to request to have
or not have an autopsy or pathology exam as determined by applicable law.

To have information presented in terminology understandable to the
parents regarding their baby’s status and cause of death, including autopsy and pathology reports and medical records.

To plan a farewell ritual, burial or cremation in compliance with local
state regulations and according to their personal beliefs, religious or cultural tradition.

To be provided with information on support resources that assist in the
healing process; for example, support groups, counseling, reading material and perinatal loss newsletters.


Rights of the Baby

To be recognized as a person who was born and died.

To be named.

To be seen, touched and held by the family.

To have life-ending acknowledged.

To be put to rest with dignity.


Reprinted with permission by National SHARE office: St. Joseph’s Health Center, 300 First Capitol Drive, St. Charles, MO 63301-2893

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Partnership for Parents • 65 Nielson St #108, Watsonville, CA 95076 • 831.763.3070 This web site is the property and copyright ©2006 of Children's Hospice & Palliative Care Coalition, www.ChildrensHospice.Org; and was provided by a grant from The Robert Wood Johnson Foundation, Princeton, New Jersey, www.RWJF.org; and in collaboration with Caring Connections, a program of the National Hospice and Palliative Care Organization, www.CaringInfo.org. All rights are reserved.
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