Insurance Issues
"I was told that this disease is considered a preexisting condition by our insurance company. Will my child be insurable in the future?"
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Your Rights - Your Child's Rights for Special Education Services
"My daughter is behind in school by at least 2 years because she’s been in the hospital so much and when she’s out, she either feels horrible or doesn’t want to go to school because she’s so far behind. Would she be eligible for special services?...»
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Teasing...adding insult to injury!
“When my daughter does go to school the other kids tease her. It makes me crazy! What can I do to help her cope and also educate the teachers and the other students?”
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Well Meaning People...Too Many Toys!!!
"My son was in treatment for three long years. Everyone, including me, showered him with gifts and attention. How many video games can one child play???!!?? Now, we are trying to get our life back to normal and he is used to being the center of the universe. How can we make this transition back to normal?"...»
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Missing School
"My son has been in the hospital more than in school this year. Up until now I haven't been thinking about school, I've just been focusing on keeping him alive.”
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Returning to Normal - Whatever THAT is!
"Every time my daughter falls and scrapes her knee I freak out. I need to know when I should be concerned and when I shouldn’t worry.”
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Will My Child Be Able to Live a "Normal" Life After Treatment?
"I feel like we are in a transition now that my daughter has survived the disease and the intense treatment, I am beginning to worry about the future and whether or not she will be able to live a normal adult life.”...»
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